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Post by Jura on Sept 23, 2017 6:59:21 GMT -8
The genetic lottery made me to the biggest winner and the biggest looser, all at once. There's no hope of escape, there never was. My lord.. If i'm not too inquisitive.. the "biggest looser" stands for........
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Deleted
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Post by Deleted on Sept 23, 2017 9:26:06 GMT -8
Any disease capable of limiting the availability of any substance required to sustain life below the minimum requirement is a killer.
Without the jackpot I would have died a very long time ago.
Doctors are more interested in healthy pockets than healthy patients and not interessted to learn anything about very rare diseases, because they will not be paid for aquiring knowledge.
Scientists are more interested in the mass than quality of publications.
Hartnup affects every cell in a body, but excerts most influence over kidneys and intestine.
If the transport in the intestine is restricted below minimum requirement it will kill, if there is no substitution.
The restricted transport in the kidneys is easily measurable in the urine, but has not any effect on health.
A long time ago there was an urine screening of newborns in Australia, the US and Kanada. A restricted transport in the kidneys was found in one of 24000.
Assumed 5 million newborns were screened then about 200 almost meaningless cases were found, none got seriously ill. Lazy and unscrupulous scientists wrote a lot about these meaningless cases, which led to the classification of hartnup as harmless. Any academic grade should be withdrawn from thos scientists.
There are a lot less documented cases of Hartnup found due to an acute disease. In the Internet one can easily find more than a dozend fatal cases. In some families most if not all possibly affected members died.
I do net get enough blood and urine analyses to possibly adjust my homemade medicine. Medical labaratories can request from privates up to six time the amount a health insurance would pay. Anyway, any medicine has side effects. My medicine circumvents the broken carrier, but also any possible security mechanism.
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Post by coastalrocketeer on Sept 23, 2017 9:47:43 GMT -8
"Modern medicine" is a disgusting thing where money comes before quality of care, and natural treatments and actual cures are ignored in favor of the profitability of patentable synthetic compounds the mammalian architecture has never seen before... Often leading to treatments that are worse than the disease for common ailments, and no treatment at all for rare diseases, unless a way to make them profitable can be found.
I pray you are able to keep yourself well Karl.
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Post by Jura on Sept 24, 2017 10:14:46 GMT -8
Any disease capable of limiting the availability of any substance required to sustain life below the minimum requirement is a killer. Without the jackpot I would have died a very long time ago. Doctors are more interested in healthy pockets than healthy patients and not interessted to learn anything about very rare diseases, because they will not be paid for acquiring knowledge. Scientists are more interested in the mass than quality of publications. Well .. so true.. Keep playing the jackpot! I must admit it is the first time I can hear the illness' name. I also find the contemporary medicine as a technique of filling the pocket of members of med & and pharma cast who apply knowledge of temptemporary mitigating the disease symptoms not even trying to holistically look at the patient's well being. A friend of mine who has been also playing the jack pot with eternity, found the book of Tizinao Terzani "Un altro giro di giostra (One More Ride on the Merry-Go-Round) pretty inspiring. Thanks for sharing your knowledge. Once I'm back I'm getting down to delve the geopolymer science. Btw. the excel link you posted in your first entry directing to geopolymer use in permaculture does not work any more. Do u still happen to have the XLS file it had linked to ?
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lawry
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Post by lawry on Sept 24, 2017 11:05:27 GMT -8
Just went back and your geopolymer board is gone :-( Sad to see the wealth of advice you'd put up gone, as well as the advice you so kindly gave me. Hope you are well Karl? Hope you are well Karl. Was wondering why I can't access the boards to update too... God Speed!
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Post by permaculturebob on Oct 15, 2017 10:54:55 GMT -8
Karl, I have been going back in time trying to understand the wealth of information you left on this thread and want to thank you for your contributions, even if I understand very little at this time. I would like to offer nutritionfacts.org/?fwp_search=autosomal+recessive+metabolic&fwp_content_type=videoI don't know just how applicable this information might be, but this is probably the one doctor I would trust, because he openly condemns "modern" medicine in favor of the actual scientific research that basically contradicts almost every doctor's ideas of "treatment". So maybe a little searching on the site might turn up something that can help. It's all free, so no jackpots are necessary Good luck bob
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Post by matthewwalker on Oct 15, 2017 16:21:13 GMT -8
No offense, but follow Dr. Greger's advice and you can be as fit and healthy as he is. Please don't fall for this ideology masquerading as science. There is zero science behind his advice.
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Deleted
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Post by Deleted on Oct 16, 2017 7:15:55 GMT -8
Thanks for the good intentions, but it would not help. Cell membranes are made of fats and proteins. Except of very small molecules only fats and fat loving molecules can pass. Everything else needs special doors to enter. In Hartnup not enough doors are build for neutral and aromatic amino acids. Amino acids can be relatively easy turned into tensides (molecules with a fat loving end), which allows them to pass without a door. This shortcut can be very dangerous, but aside of editing the genes, it is the only possible treatment.
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Post by coastalrocketeer on Oct 18, 2017 8:04:19 GMT -8
Thanks for the good intentions, but it would not help. Cell membranes are made of fats and proteins. Except of very small molecules only fats and fat loving molecules can pass. Everything else needs special doors to enter. In Hartnup not enough doors are build for neutral and aromatic amino acids. Amino acids can be relatively easy turned into tensides (molecules with a fat loving end), which allows them to pass without a door. This shortcut can be very dangerous, but aside of editing the genes, it is the only possible treatment. Can they be encapsulated in liposomes to get them through the digestive tract lining and into cells? It supposedly works for things like glutathione and vitamin C, to increase bioavailability into the cell? If this is possible, perhaps you could make your own liposome encapsulated amino's? This page discusses making your own liposomal C, and I imagine you could do the same with the amino's if they are water soluble... Or alcohol soluble. qualityliposomalc.com/process/index.html He says you can do it with just the blender and do not need the ultrasonic bath to produce very liposome rich solutions better than most commercial products, and he isn't selling anything, just providing info to others for free. (Kind of like my favorite hartnup's afflicted geopolymer and chemistry genius).
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Deleted
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Post by Deleted on Oct 19, 2017 7:03:04 GMT -8
Thanks for the good intentions, but it would not help. Far to ineffective.
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Post by sksshel on Oct 24, 2017 10:40:18 GMT -8
Karl, I'm very sorry to hear about your travails. You have been very helpful to me. I thought I would repost one of my last posts from your other board. I have been successful with this process and formula. Hopefully, others can benefit from it. Low-Temperature Geopolymer Setting (LTGS) Recipe and Procedure 100g kaolin clay with 38% alumina 50ml of 5% vinegar (.25g essentially activating with 2.5 % acetic acid) 10g KOH 37g sodium water glass powder 330g very fine slag sand 14g portland cement Makes roughly 10 cubic inches or 1/3rd of a liter Make LTGS Binder - Take 10g of total kaolin (1/10th of total amount) and activate with 2.5% by weight acetic acid or .2 oz (.25g) of 5% vinegar - Add all KOH 10g - Add in waterglass 37g - Let rest for an hour or two (possibly longer) until it starts to get thick but NOT HARD Final Mixture - Mix all remaining materials together (90g of kaolin, 2.25g of vinegar, 330g very fine slag sand, 15g portland cement) - Add just enough water until mixture is just liquid enough to pour into mold - vibrate on table until settled - Let stand until solid Curing Process - You must cure the product before use in a rocket stove - Store at room temperature (72 degrees F) for 2 weeks My sources of materials: Kaolin Clay shop.brackers.com/Pioneer-Kaolin-P23.aspx $16/50#s Vinegar Big Lots $2/gal KOH Ebay $14.95 for 2#s Waterglass Amazon $9.90 for 4#s Slag sand www.tractorsupply.com/tsc/product/black-diamond-fine-blasting-abrasives $7.99/50#s Portland Cement $9.97 for 92#s www.homedepot.com/p/Ash-Grove-92-6-lb-Portland-Cement-100-92-AG/202075616
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